The Spanish Congress is set to approve a new law aimed at easing the burden on patients with neurodegenerative diseases like ALS (Amyotrophic Lateral Sclerosis).

This legislation promises to provide 24-hour care at no cost during advanced stages, streamline dependency recognition, and enhance support for caregivers.

However, patients like Marcos Ramos and Juanan Mangudo express skepticism, noting that the law is a significant first step but not a complete solution.

The financial strain of ALS is immense, with costs reaching up to 114,000 euros annually for advanced-stage patients, according to a study by the Luzón Foundation.

The law aims to alleviate some of these expenses, but the implementation will largely depend on regional authorities.

As ALS progresses, patients become increasingly dependent on family care, highlighting the urgent need for comprehensive support systems.